Our Journey

Her smile can light up a room. She is my everything and I will protect her.
 ❤
McKinley was born on March 31st 2014. She was to come into this world with severe medical issues involving her brain not developing correctly. Her Corpus Callosum portion in her brain did not develop like it should causing some major neurological difficulties. She was diagnosed with a VSD heart defect at 3 months old causing failure to thrive issues. She has been followed by multiple doctors.
She has also been diagnosed with having a “lazy eye” which she wore eye patches to help try to correct. She did not sit on her own until after her first birthday, she also did not walk until 2 years old due to having a form of Cerebral Palsy.  She is slower to learn that most but once she understands something there is no stopping her. She wears orthopedic inserts in her shoes due to collapsed arches to help her walk. Now at age 3 she has been diagnosed with being on the autism spectrum.
 She is my hot little mess of  joy! To top it all off we were told that she may have a rare syndrome and she will need to see a specialist to determine this. With everything that she has going on and all the challenges  she is so happy and so sweet. She is non verbal and loves sensory stimulation. However at times she experiences sensory overload. When this happens we sing her a song and her world balances out. Her favorite things include music, playing in water, Elmo, Mickey Mouse, wheel of fortune, her family, and any bright light.
If you have a child with special needs of any kind hang in there, you got this. Each day is a struggle and a battle within as a parent, at times I want to fall apart and its OK to be upset but be strong it makes a difference. McKinley has a wonderful family who loves her and supports her and each day we try to do whats best for her, but it’s not easy and we learn a lot each day…

“It’s not our disabilities, It’s our abilities that count.”

-Chris Burke

 We were able to be a part of a wonderful organization in her first year of life. They helped us along in the beginning and showed empathy and compassion to what we were going through.. at that time we had no clue where the road would take us… we are forever thankful for the support from Sparrow Clubs

Sparrow Clubs Non Profit Kids Helping Kids

Watch Her Video

We did start a Go Fund Me in the beginning of her journey, what we raised paid for her first MRI bill 🙂 who knew life would cost so much, but for her we will take on that cost…

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#myheart #ourlight #beauty
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All of us on the last day of her SparrowClub Assembly with the kids at Hedrick Middle School……

 

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Getting her EEG test done to monitor for seizure activity
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Back when she used to have to wear a soft helmet 24/7 due to being so unstable. And her friend “Burt dog” always by her side…
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Getting her echo done

 

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Happy days outdoors in Oregon. Enjoying the outside world, her favorite place to be…
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Exploring with Burt Dog
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In the ER getting hydrated after catching a good ol virus… even the smallest sickness knocks her down but she had her hero aka Daddy
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Walking on the beach with Dad
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#momlife
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Little Miss Mini Boss McKinley